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dinsdag 6 december 2016

December 2016
Uit Doorgang nr 57



 Wetenschappelijk onderzoek (AMC) naar de genezende werking van Kurkuma bij kanker








 

donderdag 1 december 2016


 2 studies of HIPEC with Melphalan as an alternative
 1     https://www.ncbi.nlm.nih.gov/pubmed/24276642 

Ann Surg Oncol. 2014 Mar;21(3):908-14. doi: 10.1245/s10434-013-3407-6. Epub 2013 Nov 26.

Melphalan: a promising agent in patients undergoing cytoreductive surgery and hyperthermic intraperitoneal chemotherapy.

[PubMed - indexed for MEDLINE]
 
 
* De volledige tekst vind je onder "Paginas".


Gastroenterology Research and Practice
Volume 2012 (2012), Article ID 827534, 5 pages
http://dx.doi.org/10.1155/2012/827534
Research Article

Hyperthermic Intraperitoneal Chemotherapy with Melphalan: A Summary of Clinical and Pharmacological Data in 34 Patients

1Washington Cancer Institute, Washington, DC 20010, USA
2MedStar Health Research Institute, Washington, DC 20010, USA
Received 16 April 2012; Accepted 1 May 2012
Academic Editor: Yan Li

* De volledige tekst vind je onder "Paginas".

woensdag 30 november 2016

Surviving PseudoMyxoma Peritonei (PMP)

Surviving PseudoMyxoma Peritonei (PMP)


De Nederlandse PMP - site voor patiënten, professionals en belangstellenden:


                                  www.pmpinformatiesite.nl











Mijn nieuwe emailadres / my new emailadres is:

pellegorna@gmail.com

(ornapelleg@gmail.com  is not active  anymore)
November 2016

This information might be useful for those who are looking for a very good oncological surgeon in Israel
Prof. Aviram Nissan, who has worked for years at the Hadassha Medical Center, Jerusalem, and later at Beilinson Hospital,  is now head of the department of surgery C of the Sheba Medical Center, Tel Hashomer. 
Prof. Aviram Nissan is an experienced, very devoted specialist of  CRS / HIPEC.
November 2016
Changes, developments  concerning PSM/PMP/Apendix Cancer treatment
in The Netherlands/ Nederland:

Dr. V. Verwaal , oncological surgeon specialized in PMP, CRS/HIPEC, is not working anymore at the  Cancer Institute AVL in Amsterdam. He has moeved to Denmark.


Since a few years the Erasmus Medical center, Daniel den Hoed Cancer Institute, Rotterdam,
has joined the HIPEC centra in The Netherlands and is being active also in the field of research.
Contactperson: dr. Burger.

zaterdag 27 september 2014

Lotgenoten PMP (Pseudomyxoma Peritonei) /  Supportgroup

Mocht je deze site zijn tegengekomen, 

en heb je behoefte aan contact met lotgenoten,

mail naar mij ,  pellegorna@gmail.com  


Er is in Nederland een groep lotgenoten, die ongeveer 1x per jaar
bij elkaar komt (zie het artikel hier verder op).  Door het jaar heen mailen lotgenoten naar elkaar, wanneer ze vragen hebben of iets met elkaar willen delen. Neem contact op als je behoefte hebt aan contact.  Lotgenoten uit België zijn uiteraard welkom.






Lotgenoten PMP (Pseudomyxoma peritonei)
artikel in het blad Doorgang, september 2014
door Lorette van Heteren en Orna Pelleg
 
 

 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
Exclusive: Dying with cancer, then I found a cure on the internet

When she was diagnosed with a rare cancer and given just three months to live, Dawn Green and her family were devastated

Read more  /  Lees verder

http://www.mirror.co.uk/news/uk-news/exclusive-dying-with-cancer-then-i-found-a-cure-339906


Some notes from me, Orna.
The above massage is from may 2012.
It is now september 2014. I am  visiting my own blog..... reading this massage about Dawn.
Dawn is stil alive!! and very present and active with her charity, PMP PR activities, travelling to congresses in the USA... unbelievable enrgy!!  cheers, dear Dawn!


It is now 2016. I am visiting my own blog after a very long time, becuse this xxx PMP has been keeping me busy...
I am sad , because Dawn is no more with us. 
But I am also happy, because Dawn survived the PMP much longer than this 3 month the gave her. And she new how to live!!!
So please do not give up when the doctors tell you such things!

donderdag 28 februari 2013

Maart 2013

    darmkankermaand

           extra aandacht voor

                   Pseudomyxoma Peritonei

Actualiteitenoverzicht

 
25 Februari 2013
Proef met iPad op operatiekamer Antoni van Leeuwenhoek
Chirurgen in het Antoni van Leeuwenhoek ziekenhuis, Amsterdam,
hebben als een van de eersten in Nederland gewerkt met een iPad op de operatiekamer.

zaterdag 20 oktober 2012

Chemo-brain


Home > Health > Brea

Julie Tharp, a home-care agency manager, was diagnosed with cancer two years ago, then had six months of chemotherapy. Soon after, going into a room and not knowing why she was there became common, she said. (Stephen M. Dowell / October 4, 2012)

      By Marni Jameson, Orlando Sentinel

        1:50 p.m. CDT, October 6, 2012
Chemo brain, the foggy thinking that cancer patients often complain about and doctors often dismiss, just got a jolt of validation from a large new study out of Moffitt Cancer Center in Tampa.
Researchers there analyzed 17 previously published studies that looked at cognitive function in breast-cancer patients after they had undergone chemotherapy.
They found that the average cancer patient suffered impairments in verbal abilities, particularly in ability to find words, and got lost more easily than those who never had the cancer treatment.
Julie Tharp of Oviedo welcomed the affirmation.
"The minute I saw the study, I printed it off and hung it on the door of my office. I told my colleagues and husband, 'See, I'm not crazy. Chemo brain is real!' "
Tharp, 51, a home-care agency manager and mother of two college-age sons, was diagnosed with cancer two years ago, then had six months of chemotherapy. Soon after, going into a room and not knowing why she was there became common, she said.
Today, her brain works better than it did during the hazy months of chemo, but "my memory has never come back to what it was," she said. "It's as if my brain doesn't have the same triggers that remind me to do things."
Tharp never mentioned the memory problems to her doctor, nor did he tell her that cognitive impairment was a common fallout of chemotherapy.
"I never thought to mention it because I found ways of dealing with it," she said.
Not all cancer experts bring the subject up.
"Some oncologists are very aware of this," said Heather Jim, a Moffitt researcher and lead author of the study. "But for others, it's not on their radar."
The oncologist who treated Debra Ellison, 57, of Port St. Lucie fell into the latter camp.
Ellison, a data processor for a medical-supply company, had four months of chemotherapy in 2009 after her breast-cancer diagnosis. "I thought I was going crazy," she said of the memory problems that started.
"When I told my oncologist, he said, 'There's this thing called chemo brain, but I don't believe in it.' "
Ellison still has times when she can't find words, and her attention span is much shorter. Sometimes, in the middle of a conversation, she forgets what she's talking about
When she learned that chemo brain was real, she felt relieved.
"It's frustrating when people don't believe you," she said.
Most studies to date have focused on breast-cancer survivors because they make up such a large pool. But chemo brain is common among survivors of other types of cancer as well, said Dr. Garrett Riggs. A behavioral neurologist at M.D. Anderson Cancer Center Orlando, Riggs sees many patients who have complications following cancer treatment.
"They are, thank goodness, benefiting from survival and are returning to work and their daily lives and finding their memories and cognitive function isn't what it was," Riggs said of the typical patient he sees.
In studying nearly 1,500 subjects, Moffitt researchers found that cognitive functioning varied across survivors. Some reported no impairment and others reported severe deficits, said Jim, whose research is funded by the National Cancer Institute, part of the National Institutes of Health.
Medical scientists aren't sure why the brain takes a hit after chemo, but animal studies have shown that subjects exposed to chemotherapy agents have a decreased number of nerve cells in the memory center of the brain than those in control groups, Riggs said.
Functional MRIs tracking blood flow to different parts of the brain suggest that breast-cancer patients who have had chemo have to tap more areas of the brain when performing the tasks than those who never had cancer or chemo, Jim said.
Studies also indicate that regions of white and gray matter get smaller in cancer patients post-chemo.

A way to recover
Though patients typically recognize that their cancer therapy saved their life, and they're grateful, they also wonder whether they can recover the mental function they've lost, Riggs said.
That's what researchers are looking into next.
"We're asking what patients can do before and after chemo to prevent cognitive loss, and also whether the type of chemo makes a difference," said Jim, adding that survival and preventing recurrence are "first and foremost."
Scientists are looking at drugs that might help cancer patients recover some of their lost function, "but one thing that appears to help is mental exercise," Riggs said.
Tharp and Ellison have adopted some tricks to compensate, including making more lists.
"I double-check myself," said Tharp, "and ask my co-workers and my husband to remind me of things, which is funny because I used to remind him.
Ellison wishes more doctors were aware of the problem.
"If I'd known [before my treatment] that this could happen, I could have been prepared — not confused," Ellison said. "I wish more doctors understood and didn't blame the problem on age or hormones."
For those chemotherapy patients who do experience cognitive setbacks, Jim suggests they see a neuropsychologist, who can help them develop strategies to compensate.
"Research shows that such strategies can make a big difference in daily life when cognitive difficulties do arise," she said.
The other day, Tharp saw a quote she liked: "Courage is just fear on prayer." Before chemotherapy, she said, she would have relied on her memory to store it away. Not these days. She took out her iPhone and snapped a picture of the quote.

Copyright © 2012, Orlando Sentinel
This is your brain on chemo
mjameson@tribune.com or 407-420-5158